Utter Disappointment Sprinkled with Blessing and Joy, Update Sept. 18-October 7, 2022

“We must accept finite disappointment but never lose infinite hope.” – MLK Jr

So many things going on as of late. Here is a brief synopsis.

Had the yard sale fundraiser on Saturday, September 24. It went really well. Thank you to all those who can out to support, as well as all those who worked so hard to make the sale a success, and Storehouse for Jesus for taking all the donations at the end of the sale. I have to say a huge thank you to my mom and dad for all the above and beyond work they did for weeks prior.

After the sale we traveled to D.C. for my “big appointment” that turned into my big disappointment. We went up ready to celebrate a step down, a huge milestone, I even brought sparkling grape juice to celebrate this big step and their new office, but it ended up not going that direction. The specialist felt I needed to do an additional IV antibiotic treatment. The reason I am so disappointed is with our previous appointment it was said and written that my iv therapy was coming to a close. We didn’t have an idea that more IV was even a possibility on the table. So, I was utterly shocked and disappointed when the doctor said we were doing another treatment, because of how very difficult my last protocol was. I know it sounds odd but found my self going through the stages of grief with it. I was shocked and sad, but then I think mad and kind of stayed at that stage, and then ignoring. I have prayed the Lord would give me the ability to accept this extra step and go into treatment with peace and perseverance, rather than anxiety and anger.

The doctor gave me an extra week off this week. I also had several appointments

this week, one being a neuro ophthalmologist where I received good news that though there are issues because of Lyme, my eyes as an organ are functioning well. Great news!

Some other good news was a fun visit from my friends Johnny and Karoll. My mom made a spectacular dinner, and we played a game together. I really enjoyed the visit, which brought a pocket of joy for me!

On top of that my body did fairly well with the visit, which is very exciting. Other pockets of joy include getting to take some pictures outside after the tropical storm, having a bit of time with all three of my niece and nephews that live near me, making some yummy food, a bit of one-on-one time with my youngest nephew one night snuggling over a movie, and I got a hair cut that I actually like. (Pictures to come another time.)

I have had a few run ins with blood draw back in my tubing, from my heart, while doing my lactated ringer bags. So far, I have been successful at flushing the line, therefore no need to be concerned. (But it is alarming nonetheless when I see it happen.)

On Wednesday, we had an unexpected death in my family that has be so grievous to my heart personally and for her immediate family. That evening I ended up having to go to the ER again because my port was no longer anchored down where the stitches had come worn out and broken. It was packed in the waiting room, but they worked hard to get me in and out of there. I got home that night and think the suturing was done well, but we will see next week when we change my bandage again.

Ultimately, there is a lot going on with me and my family. Please be praying God will comfort us in the loss of my cousin, that I will be able to do treatment with confidence and resilience, that God would guide me steps as I navigate treatment again, that in all things I will be able to magnify His name above all circumstances. Pray for my skin, the erythema nodosom has been acting up leaving my legs with painful goose eggs that last for weeks to months. Pray I will be able to keep my medications in, eat food normally, and no be gagging all the time, especially during treatment. Be praying for my back pain that is becoming more frequent and painful. Please pray for a slew of other health concerns I have mentioned in the past as well as so new ones not mentioned.

Thank you for your fervent support and prayers!