They said it would be bad... and they were right!

"Start by doing what’s necessary; then do what’s possible; and suddenly you are doing the impossible." -Francis of Assisi

Day 1: (April 13) This day was really bad. I had my first IV antibiotics bag and felt sick fairly quickly. The second bag, done at night, was worst than the first. My whole demeaner changed when i started it. Not only was it the first day doing the treatment, but also our first dressing change at home. There are so many details that have to be done very specifically with the changes, which adds to the overall stress. I felt poorly, nauseated, body hurt, headache, exhausted, things like that, but the stress of starting and doing so many things magnifies the emotions. To say the least it was a long day.

Day 2: (April 14) This day I did not have antibiotics, but rather a Lactated Ringer. This is a larger bag, that I have been told is a huge part of others making it from day to day with this treatment. For me it made me feel worse and I ended up being in the bed most of the day. But I was pretty exhausted from the previous day too.

Day 3: (This is today, April 15.) I had two antibiotic bags today. With how rough the first two days were for me, I was ready for a real doozy, but instead I was pleasantly surprised. I have had a more upset stomach today, have some stabbing pains, and I am pretty exhausted right now, but no where close to feeling as poorly! (Note when I say that, it doesn't mean I feel well or good, but everything going on in tolerable.) I am really counting today as a huge win. I even went on an errand with my Mom. I got incredibly exhausted and had a sharp pain but I DID IT. No one threw up or went to the ER today!!!

(As a side note, I am keeping a symptom record and list of any questions, as things arise with treatment.)

All of the messages and even some mail sent to me have been so encouraging. Thanks for those sunny spots in my day.

Thank you for all the continued prayers. Despite how exhausted and worn out I have been I am still having a hard time going to sleep. Please pray for a settled mind and body so that I can actually go to sleep. Also, as the medications continue to build the more upset my stomach gets. I believe some of the side effects from the medications may be triggering my MCAS, so keep my digestive system and my histamine reactions in your prayers.