Off Week...Not so Much: Treatment Update July 19-25, 2021

“We must accept finite disappointment, but we must never lose infinite hope.” – Martin Luther King, Jr

This week was my off week. Unfortunately, there was nothing off about it.

I have been very ill with severe stomach issues. I had difficulty eating and keeping foods in causing my entire system to become very weak.

On Tuesday I spent almost four hours at the doctor’s office dealing with my stomach as well as skin issues with my central line. ON Tuesday, I also, had to cancel my plans with Nikki to celebrate my dear friend Rebe’s marvelous light. Nikki did come over for a bit Tuesday. We looked at some pictures from our adventures in college. I got to see some pictures of “us” that I haven’t seen in ages, maybe haven’t even seen at all. Rebe was good. She was the best. I miss her so much, but always so thankful for the light that continues bringing joy even two years after she passed. I am so glad that Nikki is near because she is also the best, the kindest, most loyal, and wonderful person I know.

I am slowly trying to eat again mainly rice and broth, toast, and a few ounces of plain oatmeal. Tonight, I tried a sweet potato. It has been very difficult, mainly spending time in the bed and or the bathroom.

I had a painful migraine for two days causing my eye to swell and difficulty seeing.

Furthermore, I had to cancel three appointments at the end of the week, so I will have to reschedule them for later.

Things are getting really hard. Lately, I have been thinking how I would like to get off the ride.

But the only way to get off, is to go through it, wait till the ride stops so I can stand to move on to the next ride in life. So that is what I am going to do. I am going celebrate the little things and rest in God's sustaining presence to get through the struggle.

There is a great deal of recovery that needs to happen just to get my health back to where it was before this past week.

Please be praying for:

- my entire digestive system

-being able to eat and get my oral medications in

-my eyes & eye rescheduled eye appointment Monday

-my skin with bandage and central line area

-the persistent & painful erythema nodosum

-sleep

-persistent nerve, muscle, joint pain

-migraines

-muscle fatigue & general fatigue

-rest, resilience, & the journey ahead

*** We are also driving back to D.C. on Tuesday. Please keep me in your prayers for all the above AND how it effects traveling to D.C.

I know it’s a lot to pray for but knowing people are truly praying, helps me keep going in the tough times. Thank you to all those who have supported me financially.

When I go through a week like this, I am so extremely appreciative that I am not currently doing fundraising.

So, thank you. Thank you so very much!