Not the Words I was Hoping to Hear, Update May 8- May 22, 2022

May 22, 2022
3 min read

“Perseverance is the secret of all triumphs.” – Victor Hugo

The end of my last protocol went ok. All the symptoms and effects were right on time as the last two weeks of the protocol came to a close. My joints, nerves, and digestive system were actively hurting BUT I will say I think overall I had some less extreme pain. What we normally call “migraine week” wasn’t a week. I still had pain, a resting headache, and a few migraines but better than the last several protocols. So that’s great.

Unfortunately, even with improvements, this past week was very tough. I had a phone

appointment with my D.C. specialist on Monday. It went well in respects to we know there are good things on the horizon, but it was also very disappointing. I have been holding on with the thought that my last protocol would be the one starting tomorrow, May 23… We now know that is not the case and probably by a long shot. That mixed with negative trending blood work, weight gain, and need to see a few doctors locally about things, became really overwhelming for me.

Everything sat so heavy on me. I couldn’t believe I was going to have to do IV antibiotic treatment more times, over one more. I had some sort of end in sight for the step down to the next stage of treatment and it was a shock that that’s not true. Its hard to imagine that I have to run into the fire of pain and suffering not once, probably not twice, but many more times. So I just cried. Monday and Tuesday involved a lot of crying with the weight of it all. Just a tough situation. But the doctor still sees a lot of positives and said we will take things a month at a time. I still fully trust God led me to him and that my specialist has an anointing working with very sick people like me.

I know I will make it. I will keep going, keep fighting, just a lot. With my emotional state as it was Monday and Tuesday my physical body was highly effected and felt like a ragdoll for much of the week. It surprised me how much my physical state was affected by my emotional state. But I am doing better now. Though I know the pain that’s coming, I also have a Savior that is walking it out with me.

God’s faithfulness is so much greater than my circumstances!

*Please be praying for me as I begin treatment once again (Monday, May 23, 2022):

-Tolerance of the medications

-Strength when it all feels heavy

-Ability to rest and sleep every time I need it

-improved blood work

-the appointments to go smoothly and without sickness from treatment

-Endurance

-improvements in the amount of hair loss

-finances to continue fighting Lyme through treatment

A few pockets of joy over the last few weeks include: all the buzzing, chirping, and blooming of course. Dad brought a rosebud in my room to watch bloom, which was so sweet and really fun to see several stages of the flower blossoming. Also, got to celebrate Mother’s Day with my mom and dad and sister’s family. It was nice to see them for dinner. My mom has been so many wonderful things to me and I am so happy she is mine. Furthermore, I was able to stand to make some food for the week. One dish includes my chickpea salad. Oh, its delicious! I can’t eat real salads because I can’t digest them, but this is sooo good and refreshing, with minimal blowback! The kiddos took some fun pictures with me of “taking a bite out of Lyme” to show support of me and awareness of Lyme Disease Awareness month. It was fun to see the sour faces and to feel the love.