Not Quite Where We Had Hoped, But We Will Get There.

Sep 20, 2021
3 min read

"Keep your face toward the sunshine--and shadows will fall behind you." -- Walt Whitman

Here we go. I am not going to sugar coat the last couple of weeks. (By the way, thank you to a couple folks who contacted my mother, or I after they hadn’t heard from me online lately.)

I am so exhausted and feel poorly and weak most all the time.

Last Monday my parents and I drove up to D. C. Tuesday we had our appointment, and I tried a new IV antibiotic. At first, I was surprised I was not sicker than I expected with this medication. I had my normal nausea at first but still pleasantly surprised.

As we finished the bag, the Specialist talked with us about how things went in the previous seven weeks. During the appointment he did a thorough check on many of my systems and their functionalities. He explained several things about how and why things popped up as they had previously.

By the end of the appointment, I had gotten pretty sick, really struggling to save face till getting back to the hotel. Unfortunately, the specialist had hoped I would be a little further along at this point. So, he discontinued a few meds that I had negative reactions to, as well as increased and started several new medications. One of his goals early into my next protocol, is to decrease the pain and stabilize many systems so that my body can handle the rigorous protocol. Because of the advanced stage of Lyme and the slower progress I have made, the doctor expressed that more than likely, I would be treating on the longer end of the average amount of time with IV treatment.

We knew this was a possibility and though things are tough, I fully trust my doctor and believe he is helping me gain the best quality of life moving forward. Just like cleaning a room it gets worse before it gets better, BUT it gets better. (Keep in mind my specialist sees over 13, 000 Lyme patients around the world every year. He knows my case and is taking good care of me.)

Furthermore, I had another seizure two weeks ago. I have also had more anxiety, stress, difficulty breathing and swallowing, and an increase in sensory issues. Additionally, I had a severe panic attack. This panic attack was one of the worst I have ever experienced, if not the worst. It came on suddenly late at night and my body had major reactions during and following it, including herxing. I know that I have been nervous and stressed with this next

protocol starting. I will have to rest often to help stabilize everything the next several weeks.

My next protocol will last four weeks with the first two being highly intensive. By the end of the two weeks, I will be going through five bags a day, as well as taking all the oral medications five days a week. I've prepped and organized for this week, hoping to knock it out of the park.

It seems that I haven’t stopped feeling sickly and herxing since the appointment Tuesday.

I really need fervent prayers as I navigate these next two weeks, especially for relief and healing of:

-nausea -digestive issues

-herxing -body pains & weakness in my limbs

-SLEEP! -breathing & swallowing issues

-energy -mental/emotional strength

A few pockets of joy over the last two weeks include seeing a few neat leaves to and from appointments and seeing a large toad one evening. I got to show two of the kiddos the toad and let them touch it. And I am proud to say I know the "best pirate." Things like this feel like winks from God.