Blog Update August 15 -21, 2021: Wheelchairs, Floors, & All Mannerisms of "Fun."

I am having all mannerisms of fun these days...

This week started with the “can’t get the medicine prescribed three weeks ago and feel like I am paying those in the medical field for me to do their job for them…”

BUT praise the Lord, after a VERY long Monday in Walgreens, I spoke with my IV nurse, and she really took care of business for me! There are so many things just on Monday at Walgreens that took place but having my IV nurse give a sigh of empathy AND then say, “I am so very sorry you have been getting the runaround” meant a lot to me. I could have just lied down in the parking lot and cried. I am so thankful that even though kinks to getting the medicine still had to be worked out; the nurse listened to my words, heard what I said, genuinely apologized, and then made a game plan to help get the issue resolved!!!

Also, early in the week Mom and I attempted to go out to run some errands. I never go out and it’s a lot on my body. But because I never go out, there are a lot of places I need to go, to get food and such to last until the next time I am able to run errands again. But within a very short time of being in a store I was totally exhausted and having neuro issues. But I finally figured out one of the reasons why I feel so sick and so poorly when I walk into a store. There are a lot of words to describe that reason, but I am really grateful to know, because now I can be more proactive when we run errands.

In addition to the full day Monday, Mom did a bandage change. I have to say even though my skin is still unhappy, the sutures have made all the difference. Because I have the sutures, I don’t have to use all the parts to a regular bandage that give me chemical burns. Though I still need to tweak a few things to help my skin, this is definitely a win. AND I WILL TAKE A WIN.

he medication for week three of this seven-week protocol, as stated in previous updates, creates the most painful physical effects on my body. This continues to be true even now as I type this, but the timing in the reaction was a bit delayed this cycle. The first day of meds, while still painful, were not as bad as the previous time!

Though delayed, on Friday the medication did catch up with me. We were in a store and my limbs stopped working. Walking, standing, holding my cane, even breathing was very difficult. Mom and I had only been out for like twenty minutes but within that short time my body became so fatigued, I had to sit on the floor. After a while of doing so and Mom asking should she get a wheelchair, with her help, I stood back up. I walked about three yards and had to sit back down, this time for forty-five minutes. Mom asked about a wheelchair again and because I didn’t know how I would even get to the car, I caved. My superhero Mom was able to track down a wheelchair and eventually help me get in it. This kind of thing it tough because it’s a step above bad pain that becomes a bit scary, causing emotions to rise. With Mom’s help we took everything slow, but I was able to get into the chair in which Mom pushed me around, and later helped me into the car. She was definitely wearing her superhero Mom cape on Friday,

To say the least, Friday was quite an event.

In other news this week, it rained a LOT, I got to be in person with my sister for a short birthday celebration for the first time in several years, I saw the clouds for the first time in what felt like ages(they were beautiful and for a moment I felt like I could breathe), my gazanias are continuing to bloom on the porch, the bird feeder I watch while taking my meds has attracted some beautiful golden finches, and even better, as the birds feast they drop sun flower seeds AND now sunflowers are growing!!! (I highly recommend setting up some colorful, low to no maintenance nature, outside a kitchen window, for those who are somewhat homebound. Daily this brings pockets of joy, especially while taking meds throughout the day.)

Please be praying for me as the next two weeks unfold, treatment will continue to increase as the meds build up. Also, pray that I am able to rest often and detox throughout the day. I appreciate your encouragement and prayers for the above mentioned as well as reoccurring requests.

#lymeisttupid #feelinglymie #lymediseasetreatment #chroniclymedisease #nature #breathe #wheelchair #lymedisease #spoonie #clouds #update #keeponkeepingon #hope.