A "Different Kind of Hard." DC Trip & a New Protocol June 2021:

"Sometimes the oh so familiar becomes the unfamiliar."

There seem to be so many things going on.

On June 1st, my parents and I went to D.C. for my month three treatment appointment. After the difficulty of the last months protocol, I was really hoping that I would get a break from at least one of the previous medications. Unfortunately, that was not the case. In fact, the next protocol involves all of the worst meds starting day one, plus a new antibiotic that made me pretty sick in the office. Ultimately, the long appointment, lasting from 1-5:20pm, was disappointing in many ways, but I am going to keep to it because healing is on the other side.

A day and a half after we got back home, my older brother with his family joined my parents and I “camping.” By “camping” for me I mean the kiddos, Travis, and Granddaddy camped out in a tent and Mom and I with Erin and the little one stayed in a house across the road. I had to spend a lot of time inside because going outside is tricky for me. The great outdoors tends to not be as great with MCAS reactions to being outside with rashes and itching, immediate sunburn because of the antibiotics I am taking, I can’t get my bandage wet (North Carolina is kind of like immediate sweat with the humidity), as well as some other things like ticks are everywhere in the mountains. Nonetheless, I did get to be outside some and make some new memories with my family to celebrate my mother’s and my niece Wren’s birthday. There were some fish caught, some stone collecting, piano action, some nature seen, and of course many pictures taken.

On Monday I started Month three of treatment. This new protocol last seven weeks and starts out full force with several heavy meds. As, I began, I felt the meds quickly. Tuesday felt a lot like the hangover of all possible sickness for a Lymie. The treatment is wrecking my stomach and knocking me on my booty.

I know there is more to life, but right now this is what is going on for me, Lyme Treatment, and my body’s response to it. Treatment seems to be shifting; it is just a lot and a “different kind of hard” than in the past. As odd as it may seem, even the pockets of joy, are oddly difficult. But this is the job. There is a lot more to that, but I say that just to say thank you to all those supporting me. Thank you to all those who are praying for me, all those who are checking in, and for be understanding of my situation.

Please be praying for me this week as the medications hit. Pray I can keep the meds down, for successful detoxing, relief from pain and mal de Debarquement, and to be able to rest, sleep even.

#lymeisstupid #feelinglymie #lymetreatment #aunitieismyfavoritename #chroniclyme